Resources National Organization of Rare Diseases rarediseases.org Global Genes globalgenes.org Eurordis eurordis.org Canadian Association for Rare Disorders raredisorders.ca EveryLife Foundation everylifefoundation.org Metabolic Support UK metabolicsupportuk.org Immune Deficiency Foundation primaryimmune.org Friedreich's Ataxia Research Alliance (FARA) curefa.org/ Rare Diseases International rarediseasesinternational.org Alliance for Patient Access allianceforpatientaccess.org Global Healthy Living Foundation ghlf.org Connecting Families UCD Foundation ucdfamily.org